The burning in my arm is almost gone

I kinda feel like an idiot about this now,

but after the needle came out of my portacath in my right arm, about 24 hours later the burning around it dramatically improved,

and now a couple days later the burning is almost completely gone…it will definitely take a few more days to completely heal, but it’s almost gone.

(I just feel like an idiot because I hate to waste people’s time, Dr. Kim was so nice, and taking the needle out as a solution to the burning seems so elementary, I probably should have thought of that myself by now after my years as a patient…)

Everything else in my body is a mess. I’m still coughing a lot, sometimes with phlegm I can actually spit out,

and lately I’ve developed weird chest pain/pressure, like a vaccum is sucking in my chest. I check my oxygen level, and that’s fine, but the feeling isn’t good. It started a few weeks ago, I’m not entirely sure, but I thought it was stress about the trip, now I know it’s not. It’s related to the coughing.

I’ve recently realized the couch I’ve been sleeping on for weeks is covered in mold.

It’s been smelling funny, I ignored it cuz I thought we were leaving, but I finally flipped the couch cushions over and it’s covered in mold. Cushions are going in the garbage and I’m getting a cot, but now I’m wondering if breathing in on a moldy couch for a few months could have caused this cough (?)

Between the moldy couch and my bad vaginal yeast infection (I’m about to finally start that ointment…), maybe what I’ve been coughing is a fungal infection (?)

My lips are still strangely chapped, ointment Dr. A gave me is actually an anti fungal ointment. I’m about to try it…

My jaw/inside of my lower mouth hurts and still feels slightly swollen and tender, ie the actino infection. I’m hoping, like Lyme, eventually, somehow, miraculously, it will just go away…

But the good news, I finally started a novel, lol…finally….I need a writing project right now, I’m really depressed about a lot of things. I’m usually an isolated person anyway but the pandemic is really starting to get to me…it must be so much harder for normal people…what did people do in previous generations to get through their pandemic, we have phones and zoom and Facebook and texting and it’s still really hard?

I’m still exhausted for overdoing it last week…my bones ache again and it hurts to walk…I need this week to rest ❤️

Thank you 😍.

Happy New Year 🙂 I hope this is a wonderful year for you 🙂

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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