Current state of the port on my arm: red, burning.

This is what my port currently looks like. It burns really bad. I took out the needle that Dalmar put in Friday yesterday afternoon since I knew I wasn’t going to flush it again, and I’m surprised by how much worse my port looks today then yesterday.

Tomorrow, the plan is that I’m going to go to Cedars first thing in the morning (hopefully as close to 8am as possible when the procedure center opens) — I’m going to go to the procedure center, beg them to squeeze me in tomorrow. I’m going to bring a lot of stuff to do in case I need to hang out at Cedars all day, phone chargers and everything thing, but I’m not leaving until someone takes out my port.

If the procedure center absolutely says no way, they can’t squeeze me in, then I’ll call you and talk about going through the ER, to be admitted and have it done that way, but I only want to do that if there’s really no other way to get this port out Monday or Tuesday.

I guess I’m just wondering if there is something the procedure should do once they take it out, can they send the port to pathology to be cultured? Is there a way to write the procedure center a note so they don’t have to call and bother you? They may want to talk with you about my case 🤔.

I’m really hoping that once this port is out of my arm, that my arm rate will improve and I’ll start feeling better too. I’m glad we did everything we could to try and save the port, since I desperately need vein access, because now when the port comes out I won’t have any regrets about it. Cuz no matter what happens in the future, this port had to come out of arm right now…

It burns really bad 😢.

Thanks again for everything ❤️


About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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