Bad burning in my arm where my port was

Hopefully it will be a little better tomorrow, but the spot where the port was in my arm has burning pretty badly tonight, the pain starting to go up to my armpit.

The packing came out on Thursday and a bandage was put on. The instructions were to leave it on until next Thursday, then take it off.

The problem was last night the bandage came off when I was sleeping.

So Noah and I put on masks, and took a dressing change kit to put new dressing on it. We cleaned with the the cholera-prep (the same thing they used at the procedure center), and it stung a little. The wound had partly closed but not all the way closed. Noah seemed to think I accidentally ripped it open when I was disinfecting myself.

So I patted it, then we put the dressing on. It seemed ok, after the stinging wore off.

But tonight the burning is bad and I’m not feeling so good…I’m hoping tomorrow it’s better, I’m not sure what to do. Im pretty sure the port was infected in my arm for a few weeks, it might be festering in there pretty good. I’m not sure not sure to do another this burning.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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