Dr. Hanson isn’t at the NIH anymore — email bounced back to me :(

Dr. Hanson isn’t at the NIH anymore, he’s now at Indiana University School of Medicine, head of a pediatric lab I think. Not sure what happened with our stem cells. Something tells me that got thrown away or lost or put on a shelf somewhere…

I’m not sure I’m going to do anything else, or try to reach out to him at Indiana. Right now I’m really not feeling well, the burning feeling I had when my infected port was in my arm has now moved to my arm pit, so I’m in the midst of this…

At the end of the day, research dollars are limited and there is only so many hours in a day that anyone can think about anything…I agree with what Dr. Kachru said a long time ago, it will probably be Noah in a lab one day with his own blood doing the figuring out. 👍

Noah has a good handle on how to keep his health as stable as possible, which is the main gift I was able to give him, the gift I wouldn’t have been able to give him if I had died in the fall of 2005…a lot of people have contributed to help keep us alive all of these years, and goodness knows the trail of thousands of pages of records may lead to something somewhere one day…

Thank you ❤️.

Noah made a beautifully innocent and naive comment to me recently, adamantly and passionately,

he didn’t understand why doctors don’t get excited about a case like ours, “don’t doctors go to medical school hoping to meet patients like us?” Made me laugh and smile…if Noah does make it through medical school, he’ll definitely be a great doctor. He learned from the best 🙂

Thanks again for everything,


About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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