Waking Noah up in the middle of the night…

Noah is so thin right now (6 feet tall –> 104 lbs fully clothed),

I’ve started to wake him up in the middle of the night to feed him a bottle of ensure…

I haven’t fed Noah in the middle of the night since he was a baby,

and now he’s so thin, it’s such a razor sharp blade of existence,

the risk is too great to not be monitoring him around the clock…

Part of me has been asking ‘how did it get so bad and I didn’t notice’,

I guess it’s the laundry list of stressors and excuses,

But I should have been on top of this months ago…

Now I’m worried sick every day, until he gets to 120lbs…then I’ll be able to breathe again,

but really he needs to be a minimum of 150lbs before I can relax…

If Noah gets any thinner he’s going to need TPN, which has its own side effects and potential complications…

Hopefully the Ensure is gonna work….

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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