Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

Hot flashes are super intense and I get really sweaty

Is there anything we can do for hot flashes? Can they be related to my blood pressure problems? They keep waking me up so I’m having problems sleeping too. A flash will hit, I’ll get drenched, then I’ll have the … Continue reading

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David Noah getting his blood drawn today :)

Noah had a lot of bloodwork to be drawn today. A lot of new tests as well, it will be interesting to see what the results are.

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Noah — this is a great case study about the importance of staying with doctors who understand your c ase as well as advocating for yourself, no matter what anyone says.

Noah, I just read this case study about a patient with a rare disorder, then ran into doctors who didn’t believe him… The doctor who writes this story even says “always listen to your patient”, but in our current ‘evidence … Continue reading

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Do happen to know if Noah and mine’s entire DNA sequence has been sequenced?

Ryan, I hope you’re doing well and life is going well for you ❤️. I was wondering if you happen to remember if CHOP sequenced our entire DNA, or if they just did the exome as well. Since we know … Continue reading

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13 December, 2018 08:49

I didn’t expect to find such a wonderful thing! http://category.skkflorida.com/success Rita Kachru

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8 Things I Wish My ‘Lost’ Loved Ones Had Known About Being Friends With a Spoonie

8 Things I Wish My ‘Lost’ Loved Ones Had Known About Being Friends With a Spoonie https://www.yahoo.com/lifestyle/8-things-wish-apos-lost-210325658.html?soc_src=community&soc_trk=ma

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14 November, 2018 04:23

You can’t miss it! http://develop.knowyrgames.com Rita Kachru

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