Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

Blue Cross called me — I’m going to tell them that antibiotics are much cheaper than expensi ve MS drugs —

Blue Cross called me, can’t imagine they genuinely care about my current state of health… I was going to ignore it (like I do most of my voice mails 🤪👍), but instead I’m going to call back, and act like … Continue reading

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Please try IVIg to help fight your cancer ❤️

I really believe it will help you 😍. Love, Tara https://www.ncbi.nlm.nih.gov/m/pubmed/16391406/

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I learned something — always call an ambulance when it’s urgent

They just can’t believe it’s that serious because I ubered here. By the time they get to me, I’ll either know it’s not urgent (and I’m just going to have a super bad headache for a few days), or it … Continue reading

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Noah and I were talking tonight about how much his medical case has evolved over the years — thank y ou very much :)

Noah and I were talking about how much his case has evolved over the years, and as time passes we continue to learn more, which sheds new light in different directions. Specially, we were talking about Dr. Bute’s report from … Continue reading

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The change in my sweat just writing the email—

Just as I hit send, I got hit with another wave of sweat—it’s literally dripping off my face. Yesterday and today are the worst it’s been so far — I’ve been through a lot over the years, and this period … Continue reading

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Vicious cycle of hot sweats

When I come see you next week, I really need to talk about these hot sweats…they seem to be getting better last week for a couple of days, then they got worse, and this last few days have been super … Continue reading

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Hot flashes are super intense and I get really sweaty

Is there anything we can do for hot flashes? Can they be related to my blood pressure problems? They keep waking me up so I’m having problems sleeping too. A flash will hit, I’ll get drenched, then I’ll have the … Continue reading

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