Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

Anticipating dying I think might be worse than dying itself

I’ve been in a very rough patch the last couple of days, and I’m doing everything to hold it together, to pull through…I’ve been through a lot over the years, and I’ve come back from the edge countless times, but … Continue reading

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This is you, Noah — article on Tiger knowing he was going to make a difficult putt

Reading this article reminds me of how I felt yesterday when Noah and I were standing by the green on the 7th hole, arguing about whether or not we agreed to count the 2nd hole as ‘par’ on not, when … Continue reading

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Watching Tiger Woods videos :)

To help Noah prepare mentally for the tournament tomorrow, we watched some tiger woods videos on YouTube. I wanted Noah to see the mental focus and concentration of professional golfers — which is exactly what Noah demonstrated yesterday when gaming … Continue reading

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Are my back X-ray results in yet?

My X-ray and ultrasound results still aren’t posted to my cs link account, which is a little strange because it’s never taken them this long to post results (I did the exams last Thursday!) I did the back mri yesterday, … Continue reading

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And I should add, Noah and I both agreed, what makes this all the more difficult, is that Luke actually beli eves he’s doing the right thing —

Noah and I both agreed, probably why Luke isn’t backing down — inspite of all the facts being in our side — is that in his head Luke actually believes he’s doing the right thing — as twisted as all … Continue reading

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You’ve got to read this — there is more to life than we understand ❤️

Answer to Have you ever caught your child doing something that shocked you? by Terri Echols https://www.quora.com/Have-you-ever-caught-your-child-doing-something-that-shocked-you/answer/Terri-Echols-3?ch=99&share=1f527dca&srid=amSVA

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The FDA just approved a baby-saving drug that carries an obscene $2.1 million price tag

Noah, You should read about this new drug — somewhere in the mechanism behind how this drug delivers the correct gene is the way to cure many different genetic disorders….including our own ❤️. I know you’re going to figure it … Continue reading

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