Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

15 year anniversary at Cedars

Today is the anniversary of the first time I ever set foot on Cedars soil. Spending my 15 year anniversary getting a mammogram and breast ultrasound done lol. And I did some bloodwork in between Imaging studies. #grateful

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Family bonding time at the hospital

Some families bond over family dinner, some families bond over skiing vacations, or trips to a museum, and my son David Noah and I bond over waiting rooms for appointments or various medical procedures 🤪👍. Today we each did some … Continue reading

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Episode of severe chills on Sept 3 at 5am, then my CRP shot back up to 89 on Sept 4

I hope you’re doing well. ❤️ I had an episode of severe chills around 5am on September 3rd that lasted an hour or two, it was severe. The worst episode of chills I’ve ever had, I couldn’t even get up … Continue reading

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@Cedars during the pandemic

We just go round and round

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Numbers much better now — oxygen 97, pulse 80

I wonder if the Ig I did yesterday around noon helped…the last time my oxygen was low and my pulse was high, I did some Ig as well and within 24 hours my numbers were better, I wonder if it … Continue reading

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My numbers are looking a little better

My numbers are looking a little better (oxygen 94, pulse 95) which is good. I’ve stopped vomiting and I was even able to hold down a piece of bread with some peanut butter on it. I still feel like I’ve … Continue reading

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I’ve never been so sick in my life :(

I hope you’re doing okay…I’ve never been so sick in my life before, and my oxygen level is 90 (normal is 95-100). Dr. Sherman said to rest and try to keep fluids down (I’ve been vomiting all day), he said … Continue reading

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This Turmeric pill is helping my joint pain

I decided to try Turmeric, just to try it, not for any particular reason, and today I realized my joint pain — which had been getting so bad sometimes I could barely walk — has definitely been better the last … Continue reading

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Me practicing getting suited up to go to the lab this week…

That’s the one thing about those of us with chronic health problems, there’s only so long we can go before we have to step back into a health care facility again… I knew this day would come, so in addition … Continue reading

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Strange bruises with the severe pain in my left hand

Download Attachment Available until Jun 10, 2020 Yesterday the joints in my hand were hurting really badly, but today you can actually see physical bruises where the joints hurt really bad. My joints hurt all over my body, especially in … Continue reading

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