Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

And I should add, Noah and I both agreed, what makes this all the more difficult, is that Luke actually beli eves he’s doing the right thing —

Noah and I both agreed, probably why Luke isn’t backing down — inspite of all the facts being in our side — is that in his head Luke actually believes he’s doing the right thing — as twisted as all … Continue reading

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You’ve got to read this — there is more to life than we understand ❤️

Answer to Have you ever caught your child doing something that shocked you? by Terri Echols https://www.quora.com/Have-you-ever-caught-your-child-doing-something-that-shocked-you/answer/Terri-Echols-3?ch=99&share=1f527dca&srid=amSVA

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The FDA just approved a baby-saving drug that carries an obscene $2.1 million price tag

Noah, You should read about this new drug — somewhere in the mechanism behind how this drug delivers the correct gene is the way to cure many different genetic disorders….including our own ❤️. I know you’re going to figure it … Continue reading

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There are just some wounds you don’t heal from

Some say ‘Time Heals All Wounds’, And I say, That’s bullshit. There are just some wounds we don’t heal from…we may learn to live with them, to function in some way, but we won’t ever fully heal. I haven’t posted … Continue reading

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Blue Cross called me — I’m going to tell them that antibiotics are much cheaper than expensi ve MS drugs —

Blue Cross called me, can’t imagine they genuinely care about my current state of health… I was going to ignore it (like I do most of my voice mails 🤪👍), but instead I’m going to call back, and act like … Continue reading

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Please try IVIg to help fight your cancer ❤️

I really believe it will help you 😍. Love, Tara https://www.ncbi.nlm.nih.gov/m/pubmed/16391406/

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I learned something — always call an ambulance when it’s urgent

They just can’t believe it’s that serious because I ubered here. By the time they get to me, I’ll either know it’s not urgent (and I’m just going to have a super bad headache for a few days), or it … Continue reading

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