Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

Just got my tetanus shot

Turns out we can get Tetanus shots at Rite Aid 24 hours a day — I wish the ER nurse had mentioned that when I was checking in! Rite Aid was very efficient and helpful, and I was in and … Continue reading

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I left the ER — they were very busy, and I didn’t want to risk them calling you at 2am

I left the ER, I’m going to go back in the morning for a tetanus shot (maybe I can try an urgent care? 🤔) When I was checking in, the nurse said the drug of choice for dog bites was … Continue reading

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Thanking my home health nurse

I’ve long understood my case is unusual or strange, basically a ‘pain in the a*** for most medical professionals; they don’t get paid enough to take the leap of faith that being my nurse or doctor requires, and I’m grateful … Continue reading

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No idea what we would do without immunoglobulin

If there is a golden medicine, Immunoglobulin would definitely be in the top 5 for consideration… I’m so grateful to the universe and to my doctors and to Grampa Joe who makes getting this medicine possible… It’s truly life changing…very … Continue reading

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“We need to work on personal disciple”

When Noah got home from his appointment with you, he made this defiant declaration, “Mom, we need to work on personal discipline; I don’t want to waste Dr. Sherman’s time talking about the same thing over and over again. We … Continue reading

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Grief is a strange emotion — grabs you out of nowhere, seizing hold of your heart —

I’m currently sitting here at Nate n Al’s on Beverly just reminiscing about who knows what contemplating the shit tanker know as the shitty life and times of Tara ******, And sometimes a song just grabs you for reasons you … Continue reading

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Deadly fungal infection spreading at an alarming rate, CDC says

And another reason to try and avoid having the surgery 🥲 https://www.nbcnews.com/health/health-news/cdc-fungal-infection-candida-auris-alarming-spread-rcna75477

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Looks like Noah needs his wisdom teeth out :(

I’m thinking we’ll do that after we go to Canada to get the medicine early April…which reminds me I need to talk to Mark about the tickets… I’ve been hoping my stomach pains would go away completely, but I think … Continue reading

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An Experimental Breast Cancer Vaccine Might Already Be Saving Lives

Cancer vaccines — it’s the wave of the future, the acceleration of cancer vaccines might be one of the silver linings that came out of covid— https://www.yahoo.com/news/experimental-breast-cancer-vaccine-might-140000789.html

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I hope you’re having a nice weekend ❤️

Omg wow I can’t believe people two blocks away still don’t have power — what a sad state of our electrical grids, it’s very scary to think about it 😦 I got very weepy today when my nurse came over, … Continue reading

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