Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

With CRISPR gene editing, unique treatments begin…

This is really exciting development in medicine 😍 https://www.yahoo.com/news/crispr-gene-editing-unique-treatments-144335027.html

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Shannon’s colonoscopy results – 2 polyps

This is my sister’s colonoscopy results (dob 3/20/76). I’m so friggen happy I kept pushing her to get one done.

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Hollywood as we knew it is gone :(

I really think Hollywood as we knew it, is gone — it was already on the brink before the pandemic hit, with too many other options, it’s just now the pandemic had forced people into new habits, into new normal … Continue reading

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My arm after the port needle came out a few minutes ago

This is what my arm looks like right now after the port needle came out a few minutes ago. My arm is fine — nothing particularly alarming, mostly just tape residue and a little blood and bruising around the port … Continue reading

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Weird yellow/green toe nail with a strange ridge on it

I have a weird yellow/green toe nail with a strange ridge on it…maybe it’s a fungus? Because I’ve had SCC in multiple places now, could it be that? 🤔

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Cali’s expression says it all

And this is how I was scratched up a zillion times 🤪🥰💥

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One of the more painful ports I’ve had inserted 🥲

This port in my left arm is definitely the ugliest…when my nurse took out the first needle last night, it bled and bled from the hole, as if there was a big pocket of blood around the port and now … Continue reading

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“These tubes are NOT play toys” 🤪

It’s difficult trying to explain to my kitten that these tubes coming out of my arm are NOT play toys. 🥰

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Here we go! Power port #7 (or #8? 🤔)

I’m getting my new Power Port today, I love these Ports. I wish I could send a thank you card to the person who invented them ❤️⚡️

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If I could write a poem about an IV stick, it would be about this one ❤️

If I could write a poem about an IV stick, it would be about this one for sure 🥰💯 This IV stick in my right forefinger was the **best** IV stick I’ve ever had in 16 years of being stuck … Continue reading

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