Author Archives: hopeforanswers

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.

9 October, 2018 14:27

http://bit.salarydom.com Rita Kachru

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Ultimate proof of an immune deficiency: stack of medical bills

I was going through some piles of papers, and there are just my medical bills over the last couple of years. Not all of my medical bills over the course of my life, just the last couple of years. (And … Continue reading

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24 September, 2018 07:15

http://prime.trineboode.com Rita Kachru

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“The Taste of Sickness”

When I get really sick, I can taste it…it’s a weird taste, kind of like when they flush my port with saline, and I can taste it for a moment, but the The Taste of Sickness is different…not so one … Continue reading

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13 September, 2018 07:52

http://tag.lowpricespeedyshipping.com Rita Kachru

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Instructions for when I’m dead

Shannon, As difficult as this may be, this is how I want you to handle my death. **Don’t** call the paramedics right away. I’m already dead. There isn’t anything they can do. If you find me when Noah is in … Continue reading

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Note I posted in response to someone freaking out about when they’re going to die—it got a few positive feedbacks, which surprised me ❤️

I posted this note on Facebook in response to someone freaking out the fact they’re going to die (recently diagnosed with stage 3 cancer), and as someone who has been close to death many times and come back —.and each … Continue reading

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