Category Archives: Medical History

I was a big liar today at the dentist.

Last time I tried going to see a dentist (an embarrassingly long time ago–over a year I think–), the entire visit went down in flames. Once I started talking about my medical history, he flipped out, wanted a signed letter … Continue reading

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I smell like an outhouse

Whatever is brewing in my urine is back in full swing…it must not be responsive to doxycycline or Flagyl, since I’m currently on those. (Whatever I cultured positive to at the end of April, could that be coming back?) I … Continue reading

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David’s CD 4 count is low, like mine

I attached below a copy of the email I sent to David’s pediatrician, Dr. Crosby (who is *amazing*–she’s been very supportive over getting the answer for David over the years–) From her email, it sounds like David’s recent blood work … Continue reading

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Vomiting tonight…not fun :(

I vomited again tonight, pretty badly. I haven’t suffered from this much nausea and vomiting as I have over the last few weeks since I was pregnant (and I am definitely *not* pregnant right now). It seems like whenever my … Continue reading

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Blood off to CHOP: exciting!

Hopefully, this C2 complement test will help shed some light on our case!

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Coughing fit while dosing Doxy

I just had a huge coughing fit about an hour and a half into my two hour infusion of 200mg of Doxy…the coughing fit hit so hard, I actually vomited outside of the Denny’s. It was productive a couple times … Continue reading

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“NEMO syndrome” blood test

The email I sent to David’s pediatrician about him doing this new NEMO mutation test–it definitely seems interesting– 🙂 Begin forwarded message: From: Tara Date: July 18, 2013 4:40:59 PM PDT To: “Dr. Crosby” Subject: “NEMO syndrome” blood test Dr. … Continue reading

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David Noah’s immunological records

I’ve attached a copy of some of David’s immunological records…it’s not all of his health records, but this is a copy of his pneumococcal levels taken in Feb 2012, and then a year later in Feb 2013. These blood tests … Continue reading

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The right chest pain–*not* a pulled muscle

So I went into the pool as an experiment, and sure enough none of the swimming strokes hurt or put any strain on the pain in my right chest. It only hurts more when I take in a deep breath … Continue reading

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Maybe a complement deficiency?

I’m still struggling to get through my recent health emergency, and it is not easy. Even though I have the limitations of this, I know every moment I’m still breathing I have to try and think about getting the answer … Continue reading

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