Category Archives: Uncategorized

David Noah getting his blood drawn today :)

Noah had a lot of bloodwork to be drawn today. A lot of new tests as well, it will be interesting to see what the results are.

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Noah — this is a great case study about the importance of staying with doctors who understand your c ase as well as advocating for yourself, no matter what anyone says.

Noah, I just read this case study about a patient with a rare disorder, then ran into doctors who didn’t believe him… The doctor who writes this story even says “always listen to your patient”, but in our current ‘evidence … Continue reading

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Do happen to know if Noah and mine’s entire DNA sequence has been sequenced?

Ryan, I hope you’re doing well and life is going well for you ❤️. I was wondering if you happen to remember if CHOP sequenced our entire DNA, or if they just did the exome as well. Since we know … Continue reading

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13 December, 2018 08:49

I didn’t expect to find such a wonderful thing! http://category.skkflorida.com/success Rita Kachru

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8 Things I Wish My ‘Lost’ Loved Ones Had Known About Being Friends With a Spoonie

8 Things I Wish My ‘Lost’ Loved Ones Had Known About Being Friends With a Spoonie https://www.yahoo.com/lifestyle/8-things-wish-apos-lost-210325658.html?soc_src=community&soc_trk=ma

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14 November, 2018 04:23

You can’t miss it! http://develop.knowyrgames.com Rita Kachru

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I’ve might have hit a major breakthrough on the genetic front!!!

I got a voice mail message from the woman who was married to John Clarke who died when he was 50 years old in 1987—I had sent an email and some of Noah’s medical records (because those are the ones … Continue reading

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