Hope for Answers

One thing that’s been rattling me all day: this disconnect I’m feeling by not being able to taste things that my brain knows what they should taste like:

If my mind can be altered this much to distort what I know to be true,

Omg I love this cartoon I needed a smile ❤️

I’m doing okay, today I started to turn a little bit of a corner, Mark urgently recommended Paxlovid, Sherman ordered it, Pax is definitely helping because I started it yesterday (or the day before 🤔) and today I feel like I’m finally turning around a little,

But….today I’ve started losing my sense of taste 😢….not 100% gone but I’d say 95% gone with some sensations gone completely,

which is a very surreal experience,

because your brain *knows* what something is supposed to taste like, but it’s not there–>

I opened a coke (admittedly not the best but I couldn’t hold down food for a couple of days so I’ve been sipping a lot of Gatorade and soda),

and when I took a sip,

at first I was like ‘there’s something wrong with this can of Coke’, and almost threw it away —

then after tasting a few random things in the fridge,

I realized it wasn’t the Coke, it’s me–

Id forgotten losing taste could be an effect of covid until it started today,

and it’s truly the most bizarre symptom from an infection I’ve ever had in my life (and uve had, what like thousands of infections?) —

And losing taste is the most bizarre sensation ever —

Because it doesn’t hurt, it’s not going to kill me,

But it’s f***ing weird — like being in a Tim Burton movie (have you seen Wednesday? It’s amazing)

I had a bunch of ‘come to Geezus’ moments when I was really sick a couple of days ago [you know a lot of the usual: ‘if I live I promise to clean my apartment and

I’m getting sick of buying tickets 🙄.

Noah likes to keep reminding me ‘it’s the poor people’s tax Mom’…

I guess I’m paying’ it 🤪

Friggen scary…all Covid needs to do is mutate into an Ebola like form (which it could totally do that),

and the degree of human death and destruction a mutation like that could cause would make the first wave feel like a warm up…

https://www.yahoo.com/news/the-next-us-covid-wave-is-coming-why-it-will-be-much-weirder-than-before-200044795.html

This is kind of embarrassing, but I coughed so hard I vomited *and* pissed myself at the same time — it was like my entire body had a momentary super intense spasm — I pulled another muscle in my stomach area —

This cough is really weird…I gotta start my IV antibiotics again…I’m getting so low on my immunoglobulin, that’s probably the root of most of my problems…I’m going to figure out going back to Canada soon…

We should get the results back early next week, we’ll do his bloodwork every week while he’s in recovery, to make sure we don’t shock his system too much. 🙂

We should look into this Noah — there might be something in mushrooms that could hell you feel better and help you with your weight 🤔

https://www.yahoo.com/sports/former-nfl-qb-jake-plummer-is-now-a-mushroom-farmer-in-colorado-160030243.html

Wow — this is fascinating — I wonder if there’s a way to purify this process and have it in stock in major hospitals for emergencies just like this one 🤔

No antibiotics worked, so this woman turned to a natural enemy of bacteria to save her husband’s life

Read in CNN: https://apple.news/AlPD5ykQDQZK4spMA8eXb1A

Shared from Apple News

Noah had his last well check today, it’s basically a good-bye meeting…wrapping up one leg of Noah’s healthcare journey in preparation for the next leg…

Noah weighs 98 pounds without any clothes on…98 pounds…1 pound *less* than the last time he was there a couple of years ago…

Pediatrician reiterated Noah looks malnourished and that he needs a comprehensive strategy to overcome it…she agreed college isn’t an option until his health gets stabilized…she likes that Cathy is coming to help, clearly Noah needs a lot of support right now…

And…if that wasn’t enough, Noah has a fungal infection all over his back, probably related to his malnourish/immune deficiency. we have to get a cream to put on it twice a day for a month….

She’s excited Noah sent the genetics test, to find out which strand of the connective tissue disorder he has, and she liked that Noah has a bunch of appointments with specialists over the next couple of weeks..she said he needs a full work up…

But the main issue is Noah’s weight, gaining weight has to be Noah’s focus for the next couple of months, no matter what the cause, until he’s up to 140 minimum…

It’s going to take an entire team to support him, but she said that’s normal for severe eating disorders…

It takes a village 🥰❤️

It’s amazing how much medicine keeps finding more and more solutions to deadly problems ❤️

https://www.yahoo.com/news/man-rare-cancer-given-6-121608674.html