Monthly Archives: July 2013

My father…a rotten soul.

Posted on July 27, 2013 by hopeforanswers

There is only so much of his bull**** I can take. I tracked my ‘father’ down back in 2006 in order to try and find answers to my health problems, and he just crossed a line that I just can … Continue reading →

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Vomiting tonight…not fun :(

Posted on July 26, 2013 by hopeforanswers

I vomited again tonight, pretty badly. I haven’t suffered from this much nausea and vomiting as I have over the last few weeks since I was pregnant (and I am definitely *not* pregnant right now). It seems like whenever my … Continue reading →

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Recent blood work: T, B, NK cell panel

Posted on July 24, 2013 by hopeforanswers

I’ve attached a copy of my T, B, and NK panel results from last week…it’s kind of what is typical for me. * The ABS Lymph is 1125 (normal is 1300-2900…oh, if I could only be that guy with 2900) … Continue reading →

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Blood off to CHOP: exciting!

Posted on July 23, 2013 by hopeforanswers

Hopefully, this C2 complement test will help shed some light on our case!

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David got his blood drawn today :)

Posted on July 23, 2013 by hopeforanswers

We’re getting ready to send the C2 complement study to CHOP. I’m so excited and grateful that they’re doing this study. Hopefully, this will help us on the pathway to the answer.

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Next up for David: TLR Function Assay

Posted on July 22, 2013 by hopeforanswers

Dr. Puck’s office recommended this test for David, so I’m going to take him and do it. I just have to figure out how to get it done…nothing is ever easy. When I called the lab directly, they said I … Continue reading →

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Coughing fit while dosing Doxy

Posted on July 22, 2013 by hopeforanswers

I just had a huge coughing fit about an hour and a half into my two hour infusion of 200mg of Doxy…the coughing fit hit so hard, I actually vomited outside of the Denny’s. It was productive a couple times … Continue reading →

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“NEMO syndrome” blood test

Posted on July 18, 2013 by hopeforanswers

The email I sent to David’s pediatrician about him doing this new NEMO mutation test–it definitely seems interesting– 🙂 Begin forwarded message: From: Tara Date: July 18, 2013 4:40:59 PM PDT To: “Dr. Crosby” Subject: “NEMO syndrome” blood test Dr. … Continue reading →

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David Noah’s immunological records

Posted on July 18, 2013 by hopeforanswers

I’ve attached a copy of some of David’s immunological records…it’s not all of his health records, but this is a copy of his pneumococcal levels taken in Feb 2012, and then a year later in Feb 2013. These blood tests … Continue reading →

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Into the hot tub with my port still in

Posted on July 11, 2013 by hopeforanswers

I was totally spaced out day dreaming a few minutes ago, and I ended up going into the hot tub water with my port still in my chest, getting it soaked–oops! I immediately took it out (maybe that wasn’t smart?), … Continue reading →

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