Monthly Archives: December 2017

I keep having dreams there’s no hope

I keep having dreams there’s no hope. First dream (a few weeks ago), you told me never to mention his name again in your office (I was too embarrassed to talk about it.) The second dream (just a few minutes … Continue reading

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28 December, 2017 05:47

http://support.premierincomegroup.com Rita Kachru

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“Are you sure you’re qualified to do this?”

I just changed Noah’s saline bag in the middle of the night, and as I was doing it, he woke up in daze and asked me, “Are you sure you’re qualified to do this?” Well, um, considering I’ve done changed … Continue reading

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(Talking with Luke) Noah In Hospital Dec 24,2017

In case you need some entertainment 🙂 Luke came to see Noah in the hospital today, and half way through talking with him I started recording the conversation so I could get his idiocy on record. Luke is just like … Continue reading

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People really do suck sometimes. Especially how they treat people with chronic illnesses.

I just wrote this in response to someone who was complaining that all people do in the medical groups on Facebook is whine about their health problems. (Well, duh, it is a medical support group…) I personally rarely post anything … Continue reading

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Note to self: Ask Dr. Butte at UCLA in January what’s the mechanism that triggers someone to get a fever

I just had a revelation about our case: we need to look into what’s the mechanism that triggers someone to get a fever. The fact Noah and I don’t get fevers when we should, has *always* been a major symptom … Continue reading

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Doctors dealing with the Unknown: Most people wouldn’t like being stuck in a maze with no end eith er

Comment I just wrote in a medical group on Facebook. Someone complained that they’re long term primary care doctor—who they like a lot—doesn’t seem to ‘get it’ when she talks about her extensive and complicated GI problems… This was my … Continue reading

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