Too depressed to write.

Finding out that the N.I.H has been waiting for one vial of blood from my mother for over 2 years has completely taken the wind out of my sails.

I’m shocked.

This is David’s and mine only change for any kind of a hope for an answer, and they’re just waiting for one vial of blood from my very own mother.

Upset doesn’t describe the pain and emptiness I feel right now. I just can’t believe it.

About hopeforanswers

Some kind of rare immune deficiency, yet to be determined. A lifetime of infections without an elevated white cell blood or fever. Very grateful to be alive, very thankful for the friends who’ve supported me and for access to literally millions of dollars worth of medical care. I’m not the bubble child, I’m somewhere in between.
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